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Jon was released from the Intensive Care Unit at Phoenix Children’s Hospital today. He went home, made it up the stairs without trouble, and rested. It’s been hard for him to get sleep at the hospital with the constant beeping and poking, so he’s happy to be resting peacefully! His lungs are still very tight […]
Jon is doing well. He was up again for a little while today, but he tires easily. His current complaint is the shortness of breath. Both of his lungs were collapsed during surgery, and it will take some time to re-inflate them. He was given exercises to do to increase his lung capacity, but his […]
Jon’s chest tube and heart defibrillators were removed today (Thin wires laid on top of the heart that extend out the chest wall so his heart could be jumped like a car battery if necessary). Without all of the tubes he was able to walk a lap around the ICU with our mom, which was […]
Good evening, everybody! Jon’s breathing tube was removed late last night, which is of great comfort to him. His arterial line was also removed, so he’s just left with a chest tube (for drainage), a central line (for medications) and an IV (for basic fluids). He ate a little applesauce this afternoon and has been […]
Jonathan came out of surgery about 3:30, about 7 hours after they first started, and he’s doing ok! Dr. Teodori was not able to repair the valves, but he was able to remove an enlarged portion of the aorta so it is now normal sized, he moved Jon’s pulmonary valve to replace the faulty aortic […]
This is Melissa, Jon’s sister, and I will be updating his blog while he’s in the hospital. Not much news as of yet, He was taken into surgery about 8:30am. The surgeon spoke with the family beforehand and said he will send someone out to do updates 4 times throughout the surgery. I’ll update this […]
We met with the heart surgeon on Tuesday afternoon for the first time. When we’d gone previously (a couple months ago), we met with a nurse since he had been called into emergency surgery. We couldn’t really complain about that excuse!
Anyway, he went over the options and discussed outcomes with us. There are two good […]
On Monday, September 25, I’ll be having open-heart bypass surgery at Phoenix Children’s Hospital to correct a congenital defect called a thoracic aortic aneurysm as well as a bicuspid aortic valve. The aneurysm is a fancy name for saying that the wall of the aorta is weakened and would eventually burst if it gets large […]
You’ve stumbled upon Jon’s new blog! Although the timing is purposeful (more on that in another post), it’s probably overdue. I enjoy writing and am looking forward to sharing thoughts about whatever comes to mind and the goings-on of the family and friends.
See more about me and some family photos using the links above. Try […]